Sunday, May 16, 2010 | By: Mari

Making Mama Proud

It's never too early to start good oral hygiene practices, especially when two more teeth have made their way in! It's actually almost scary how intently he's brushing...

Sunday, May 9, 2010 | By: Mari

Zzzzzzz

Aaron had a sleep study conducted at the end of April to try and figure out why he's been needing oxygen while asleep. It was actually done in a two-room hotel suite, which was pretty cool. Clayton had one room all to himself while I slept in bed with Aaron. He pretty much only got 4 hours of solid sleep. The rest of the time he was pulling the cannula out of his nose and wrestling with the techs as they tried to put it back on. But, 4 hours was plenty for them to analyze.

Last Tuesday we saw his pediatric pulmonologist and were able to read the report from the study. Initially, his doctors were all concerned about central hypopneas in which the brain isn't sending proper signals to breath deep enough or at all. But, the study showed that Aaron had obstructive hypopneas! So, there is nothing wrong with the signaling, there's just something there that is blocking his air. All I could think was, "Thank you, God!" When faced with two mountains to climb, this one seems way more manageable! So, we are off to see the ENT in June and hopefully be rid of the stupid pulse ox machine that beeps incessantly through the night!

Oh, and they weighed and measured him. My little snuggle bug is 19lb 10.8oz and 28.5in long!
Thursday, April 29, 2010 | By: Mari

It's Gone!

I came home yesterday from the hospital sans fibroid! The surgery went well. It took longer than expected (5 hrs instead of 3) because it was bigger than they thought. Turns out that the fibroid was much bigger than my uterus itself. And, it was located completely in the top (fundal) wall of the uterus. It didn't penetrate into the cavity so they only had to cut through the outer lining of it. They are still recommending c-sections for future births because of how much they took out. But, the robotic procedure worked very well and I only have 5 tiny incisions instead of a giant one. I am quite sore but that's what prescription pain meds are for. I still can't pick Aaron or anything heavy up, which is the toughest part. A few weeks of rest and I should be back to normal! Thanks for the thoughts and prayers.
Monday, April 26, 2010 | By: Mari

4 Months Pregnant?

Don't worry, I'm definitely not pregnant. Although the current size of my uterus has lead many medical professionals to think that.


So, I had an ultrasound at the beginning of January and the fibroid is just as big as it ever was. The consensus: get it out! Although there isn't much research stating that uterine fibroids lead to premature births, when my OB discuessed my case with a room full of collegues, they all agreed that mine did. I received a shot that day of Lupron to hopefully shrink the fibroid 30-50% and make for a less invasive surgery. Essentially, the shot stops estrogen production for 3 months, putting me in a medical menopause and giving me some pretty nasty hot flashes.


I had my pre-op history and physical a few weeks ago and my doctor said the fibroid feels smaller. So the plan is to start with a robotic myomectomy and move to a classic c-section incision if they need more access. With the robot, there will be 5 small 1cm incisions around my abdomen. In the one right above my belly button, they will put a camera. Instruments will be placed in the other 4 sites and the surgeon will be controlling them from a station in the operatory. Pretty crazy. They will then section the fibroid out and use something likened to an "apple corer" to free the fibroid up and suck it out one of the small incisions. If this wasn't being performed at DHMC I'd have reservations. If all goes well I could be back to work and my normal routine within 2 weeks. If, however, they can't get to it all with the robot, they will make a c-section incision along my bikini line. With that procedure, I will be off my feet for 6 weeks. I can't even pick up anything more than a milk jug.


Needless to say, we moved into my parents house for the next few weeks, since I won't be able to take care of Aaron. Today, I am on a strict clear liquid diet. And, I had to do a "bowel prep" with magnesium citrate. I even had to leave work early today because my terrible migraine turned into wretched vomitting because I can't take any medication for it. Fortunately, I am first on the schedule for surgery tomorrow so it will all be over soon.


I am praying the the robot works. But mostly that God is with me and the surgeon keeping us all safe! I will update soon.